"Steps to Bring Us Together"
Virtual 5k Run/Walk Event
Join us for the PMG Awareness Organization's 8th Annual 5k Virtual Run/Walk Event - "Steps to Bring Us Together." Our journeys navigating through polymicrogyria come with all kinds of steps. The first step of being diagnosed. The step to finding and building relationships with the PMG Awareness Organization community, to the many steps that will create the much needed funds for our bi-annual family convention and the Team PMG Awareness Racing events. Each step taken towards progress, each step taken when you can't take another, each step taken to raise awareness, are all important and courageous steps. Will you please Join us in "Unlocking the Mysteries of Polymicrogyria" step by step.
Location: Anywhere In the World!!
This is a virtual run/walk 5K event and can be completed wherever you are and at any time between October 15th - 29th, 2022.
Complete it all at once or complete a little bit each day. You can run, jog, or walk on the street, a trail or even on a treadmill. Those who need assistance can be pushed in their wheelchairs. There is really no wrong way to accomplish the distance... it's up to you! Go at your own pace and enjoy the process!
Our hope is that each parent of a child diagnosed with PMG, and adults with PMG, will create a TEAM under their child's or his/her name. We encourage that the TEAM be shared with friends and family and over social media, while asking for their support by either registering for the event under that particular team name OR by having them donate directly to your TEAM.
In order for you or other participants to join or create a TEAM, you must agree to create your own PERSONAL FUNDRAISER during the registration process. Once you agree, you will see a drop down of already existing TEAM NAMES that you can join OR you can create your own. You will need to join a team or create your own to proceed with registration. If you are simply joining a team, you can choose to share your fundraising page with others to attempt to gain more donations for the team, but it is not required.
In previous years we've encouraged participants to get creative with this event by hosting events and incorporating the 5K into the festivities. We would still like to encourage participants to get creative with this event; just please do so safely and by following the guidelines in place by your local government officials in you area with regards to the COVID-19 pandemic. In the past participants have asked their attendees to meet at a local park or their home. While completing the event, they incorporated music, games, BBQ's and other fun entertainment! The possibilities are endless! The goal of this virtual event is to raise money and awareness for polymicrogyria, so we want you to have fun with it! Again, just be safe in doing so.
Feel free to share photos and videos of your own event in our PMG Facebook page at http://www.facebook.com/groups/PMGawareness/
Important Dates to Remember
Every participant will receive a custom medal and event t-shirt. You must register for the event by September 25th, 2022 in order to receive your medal and t-shirt by the official start of the event on October 15th, 2022 (Shirts and medals will be shipped to you on October 8th). Those who register AFTER September 25th, 2022 will receive their merchandise AFTER the event has ended. Each registrant will also have the ability to purchase additional t-shirts during the time of registration.
By participating in the PMG "Steps to Bring Us Together" event, you will be benefiting the PMG Awareness Organization, Inc. by helping us provide our families with the Bi-annual Family Convention. This event is so important because it brings PMG families together so that they can connect and learn from one another as well as from other medical professionals. Many of these families are newly diagnosed and are just starting out on their journey. The majority of these newly diagnosed families have never met another individual with PMG. The connections that are formed and the amount of information gained during these conventions are life changing! Families are given a renewed sense of hope and encouragement, all the while, being surrounded by others who truly understand the path that they are on. There is nothing like it! Your support also helps us to host events with your incredible race car, Team PMG Awareness Racing. These events travel across the country. Families and individuals come from all over to see their name on the car and to spend the day hanging out with other PMGA families and watching Team PMG Awareness race. They are 6 times national champions and champions of our hearts for spreading awareness and uniting a community through racing.
Last year, the Virtual Run/Walk event brought in approximately $37,000!! This year, we are hoping to beat $40,000! With your help, and with those you share this event with, we believe that we can reach our goal!! 100% of all net proceeds raised from the Virtual Run/Walk event will go directly to the PMG Awareness Organization, Inc.to continually fulfill its mission.
Thank you to all of our friends, families, supporters, and volunteers who come together every year to make this event a success. We are truly grateful for each and every one of you!
Want to Learn More?
The PMG Awareness Organization. Inc. (PMGA) is a non-profit organization consisting of families, caregivers and medical professionals who care about and strive to make a difference in the lives of those affected by Polymicrogyria.
You can learn more about our organization and what Polymicrogyria is by visiting our website at http://www.pmgawareness.org